What a simple word, yet extremely difficult to achieve
on any sort of a regular basis. It does not come easily, at least not for me.
It encompasses something as little as waiting for a traffic light to turn
green, waiting for your loved one to return home from war, and in my current
situation… waiting for insurance to approve a medical procedure that I need to
hopefully stop the new metastatic tumors in my liver from progressing further.
The specialist told me to prepare for a long wait, possibly 4 to 5 weeks as all
insurance is cutting back on approvals for this procedure because of cost, and
yes because I have advanced cancer with poor prognosis. Medicine, and getting
what might help, as well as many aspects of life, are not black and white, not
a certainty, and cannot be predetermined. Everything is weighed and
judged. I understand this now more
than ever. There are limits and
decisions to be made, but knowing that, doesn’t lessen the stress on ones’
patience. Only we can lessen the stress for ourselves by not wasting the time
we have to spend waiting.
Patience is such a wide subject, that I will limit
this post to just part of my cancer journey, the most recent few months
(dealing with the new liver mets). I had considered having a mastectomy one
year into my journey, but when I was told it would not change my prognosis, and
not being fond of surgery, I dropped it. In December, since there were few
chemo options left, and I no longer wanted to live with the extreme side
effects, my oncologists and I discussed that if my pet scan showed the cancer
only in my breast, that it would be a good time to discuss the mastectomy
option. I had initially considered a mastectomy earlier because, well, I am
odd, and so is my cancer. There are so many variables with cancer, but this
specific reaction I had is rare. Usually when cancer has metastasized (spread
to another part of the body from the original tumor), if the cancer responds to
chemotherapy, it does so in the original tumor faster than in the mets. I was
opposite even the first time through chemotherapy five years ago. So after this
oddity repeating a few times over the last couple of years, as well as it
progressing in the breast first, rather than the mets, my current oncologists
agreed that in my weird situation that a mastectomy might be worth a try, to
slow the progression. There is no
scientific data on rare situations because, well, because they are “rare” and
how do you study a large group of people if a large group does not exist. Mind,
scans can only detect cancer if it is something like 5mm in size. So having a
clean scan was also not a sure thing, but would be a good sign that the timing
was right.
Now on to the PET/CT scans, not good news, it detected
uptake in the liver and suggested I have an MRI to confirm. Well this put the
mastectomy on the back burner, if it was continuing to progress, and in new
organs, why go through surgery. But then in January when I had the abdominal
MRI, rather than the usual pet scan, nothing was detected in the liver. I am
thinking miracle! (I didn’t usually have MRIs and didn’t realize that it could
“not see” it.
So, now it was on to scheduling the mastectomy the end
of February. Then, one month after
the mastectomy, it was time for another PET/CT scan, which is basically every
three months when you are progressing and for a while after being stable or
regressing. So guess what? Masses were detected again in the liver, bigger and
more aggressive than in December. Why the MRI did not pick it up, I don’t know
for certain. The two scans use different technologies to detect cancer. Maybe
because I have inflammatory breast cancer, which grows in sheets before in
becomes a tumor (at least in the breast). So what next, I could dwell on having
had the mast and all it’s complications, when I was not going to have it, had I
known there were indeed liver mets. But it was done and could not be undone.
Next, onto another Doctor, a radiology oncologist in
Baltimore. The procedure I was hoping for (yes I did a little internet research
beforehand), with the least side effects and less intrusive, was no longer an
option, as one of the tumors was now over the size that is compatible with this
technique. Surgery is not a good option as the 3 tumors are in completely
different areas, including both the right and left lobe, and I imagine recovery
would be difficult even if the surgery was possible. So I wait, wait for
approval from medicare and my medigap insurance for the best , if not only
option for me. Then If approved, I will have a test to make certain I am a
candidate for the procedure, a basic mapping of the main artery that goes to
the liver, to make certain there aren’t branches (?) or other situations that
would make this technique possible. And, all the while, I don’t know if the
tumors are growing, most likely though.
I did start on another non-chemo medication, because,
the pathology report based on the mastectomy tissue did determine the hormonal
aspects of my cancer had changed since my first biopsy five years ago. So maybe
the mastectomy was not a waste after all??? I know most if not all things
happen for a reason. Maybe God intervened so to speak so that the tumors would
not be detected on the MRI so that I would go ahead with the mastectomy. Why,
how, when really don’t matter now, as they are done, in the past, etc..
Anyway, back to the “having patience” topic. I cannot
do anything about this wait, any more than I can most of the time. If I spend
all my time worrying about it, I waste more than a month of my life, and at
this point I have realized that each and every day is precious. So I continue,
march on, as if there is no end in sight. As we all should, as we don’t really
know when the end will come. I actually have been given a gift, so to speak,
knowing how precious this month is, and to live it larger than ever… No, not
wasteful, or diving out of planes J, but
living for God, for my family, church, friends, neighbors, strangers. Every day
and every act is important. No, I am not a saint, and I have “mental”
medications that help as well, but it has been drilled into me over and over
during the last five years, that living the life of a victim, giving up, is not
living.
So today, when my daughter and her two glorious kids
(some of my special earth-angels) visited, I actually made dinner. Nothing
special and most of it was done while sitting in my scooter, but it felt good
to accomplish something. It feels so much better than a few days ago when I
wasted an entire day with the blahs watching movies. AND my evening ended with
lots of hugs and love. What could be better!
Tell someone you love them today! And try to have
patience… the alternative only hurts you, …well most of the time, there are
always exceptions. J
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